certainly not a rare or unheard-of condition, just one that is not yet accepted as a disease by many mainstream experts. Seems the story could have used "HHS" instead of waffling back and forth. there was a Chri=onic Fatigue support group here locally-I wonder why the extreme (and self-destructive) tactic of a hunger strike was necessary? where were all t-partiers on this?

FDA should "conditionally" approve some meds with disclaimers and no right to sue from side effects.

Sorry, scratch that. The NBC national site reported this as 'rare', not you in Reno. Sorry again

The CDC reports one to four MILLION people are affected by this disease in the US alone. This hardly qualifies as a 'rare disease' as you reported.