ALS patient challenges Harry Reid to improve Nevada medical care

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Updated: 8/15/2014 4:21 pm
CARSON CITY, Nev. ( & KRNV) -- A Carson City man hopes Senate Majority Leader Harry Reid is next to perform the ALS ice bucket challenge.

"He’s what I consider the most powerful man in the state," said Carson City resident Mike Wedin. "If you need someone to change something, that’s where you need to go."

Wedin was diagnosed with ALS a year ago and moved his family to northern Nevada in January, just before a Reno ALS clinic shut down.

"For people under 65 (years old), there is no gap insurance plan," said Wedin. "In Douglas County, there’s only one plan."

Wedin pays for 20-percent of his ALS medical bills and can only see the doctors his plan allows him to see. Even using his Medicare, Wedin has blown through more than $10,000 of his retirement savings. "I either go with the plan and hope that they take care of me, or don’t go with the plan and separate myself financially from my family and just rack up the medical bills."

Now, Wedin drives to a clinic in Sacramento for treatment and each trip costs around $400 in medical bills.

At times, he said he feels alone, but the new ice bucket challenge is making him feel relevant. Now, he wants more options and better care in Nevada. "If this isn’t a change for me, hopefully we can change for somebody else in the future that is caught in this unique situation."
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