Family fights to save son with unknown medical condition

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Updated: 7/25/2012 8:11 am
RENO, Nev. (KRNV & MyNews4.com) -- It's a fight against time for one local family, and they are hoping a doctor out there sees their story and offers to fight along with them.

Seven-year-old Ramsey Farley is fighting for his life. He can't speak other than the occasional grunt or high-pitched squeal. His family knows there is something wrong with him, but they don't know what.

"We don't know how long he's going to live," says Art Farley, Ramsey's father. "No one can tell us what he's capable of learning or not learning."

Ramsey's father Art, mother Tami and stepmother Jamie are in a frustrating battle against the clock to find out why Ramsey's health is deteriorating.

"The more he grows, the weaker he gets," Tami says.

Tami says Ramsey never crawled or walked. When Ramsey was about a year old, she knew he wasn't developing like a normal child. For the past seven years, Ramsey has only gotten worse. His muscles are not growing at the same rate as his body, and he's already had a double hip surgery. He also has trouble breathing, causing him to be hooked up to an oxygen machine every morning and night. Doctors have ruled out a genetic disease and are now looking into a neurological disease.

"He's already been to five hospitals and undergone test after test," Tami says. 

No doctor can give this family any answers.

Jamie explains, "Every time the three of us go to a doctor... It's like, where do we go from here? What do we do next? Everyone says 'Wait until he gets sick again.' No one has any clear direction."

There may be many unanswered questions, but behind his eyes, you can see a world full of life in Ramsey - a life this family would move mountains to save.

"He's a fighter," Jamie says. "He's strong and there is something in him that's better than anyone else. I just want someone else to say 'I'll do whatever it takes to help him.'"

Doctors don't know if Ramsey has another year or another 30 years of life left, but they say additional surgeries are needed on his hips and his back due to scoliosis. Before moving forward, however, the family wants to know more about their son's condition.

You can follow Ramsey on Facebook at http://www.facebook.com/ramsey.farley



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rafferty - 8/6/2012 1:29 AM
0 Votes
They need a full MRI, Nutritional work-up, and get him out of that wheelchair a LOT. He needs to be on oxygen during the day, and sit him up at night, but not disturb his sleep.

rddc1947 - 7/21/2012 8:59 AM
0 Votes
If there is anyone out there with lot's of money, please help this family. It makes me cry to see this happen to a child. No child should live like this. Everyone pray for this little guy, prayer's are so important when all else fails. God bless this little guy. Get well soon ....
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