Patients fight for FDA to approve drug application

It's a debilitating disorder that effects at least one million Americans and now patients are speaking out. The drug they say that has changed their lives is up for approval with the Food and Drug Association.

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goodstuph - 2/9/2013 3:36 PM
1 Vote
Repeat: Do any of the FDA staff and/or their families have CFIDS? FRANCES FLYNN BOYD

goodstuph - 2/9/2013 3:29 PM
1 Vote
DO ANY OF THE F.D.A. STAFF OR THEIR FAMILIES HAVE C.F.I.D.S.? FRAN FLYNN Palm Beach Gardens, FL 33410

glenp - 2/6/2013 9:34 PM
1 Vote
Please follow up on this and keep us updated. Many patients are dieing!

Mirry - 2/4/2013 2:33 AM
2 Votes
Robert miller cfs sufferer is on hunger strike in a quest to get Ampligen fda approved, its the ONLY drug treatment out there for sufferers. It has been thoroughly tested for over 20 years, it is a safe drug. Why wont they approve this drug for severe sufferers? Sufferers feel like they are being treated as second class citizens, other patients of vile illnesses have had drugs approved with no biomarkers of the disease (MS has been in the past). So why not CFS / M.E? Dont they think we're as sick? Is it acceptable for us to live our lives bedbound, tube fed, in insufferable pain? With no treatment or help? (Look up cases of sophia mirza, lynn gilderdale to see how bad this can illness can leave you) Im in the UK so its impossible to get ampligen in any way whatsover but for years ive been waiting & hoping for the day of approval of this drug which could help so many (tests show it helps 70% of sufferers) they cannot withdraw our hope now, we need this drug, there is no alternative & nothing in the pipeline. Please please please listen to robert millers hunger strike plea, we cant be left in the gutter any longer.

Janet - 2/4/2013 1:28 AM
2 Votes
Robert's video is hard to watch, he has chosen to go on hunger strike to draw attention to the neglect that ME/CFS patients suffer. There are many who are dying because there is no treatment, Ampligen could help them please don't let us die.

patfero - 2/3/2013 8:23 PM
2 Votes
At some point, people either sit down or stand up and cross a line. Every human being has seen and experienced injustice. Sometimes it is better to stand down, sometimes we all just keep looking forward to better days. However, there are times when some among us stand, cross a line and in the end lead a movement to correct an injustice. Bob is taking that action. We may not agree that AMPLIGEN should be approved for all. We may even agree with FDA findings, but we have people like BOB MILLER whose very life depends on getting this medication. There is precedent for conditional drug approval. Can we agree that collaborative study is needed as to why responders get their life back before AMPLIGEN is taken away? SOMEONE has to stop passing the buck - Oh well...there is nothing to be done - is not acceptable. Would it be if this were your brother or sister? Our patient community is 3 generations in and it is obscene that I have to look at my granddaughter and wonder if she will get sick. IF she does, will there be any help for her? People are dying. BOB and others who respond to AMPLIGEN and PAY FOR THE DRUG which is a hardship, can live.

susan - 2/3/2013 12:09 PM
2 Votes
Too many people have lost quality of life, jobs, families, homes, their very lives, to this illness, over the past 30+ years. Why do governments not recognize the compassionate use of this drug, when in the past so many HIV+ and Multiple Sclerosis patients were allowed use of drugs with shorter track records and lower efficacy rates?

matina - 2/3/2013 10:52 AM
2 Votes
Thank you for telling Robert Miller's story! Much appreciated because we never get media attention for a horrid debilitating disease. ME/CFS is, without a doubt, one of the most complex, multifaceted, enigmatic illnesses the medical world has encountered. Without this drug, many will live their lives in pain and agony..like myself. Is this a way to live...waiting to die. Please help spread this to a national level. Thank you for your time. T

Ash Wolf - 2/3/2013 9:54 AM
2 Votes
Thank you for airing this story. I hope you are planning a follow up on how Robert is doing. Please try to get national airtime for this very important story. ME/CFS is a serious & life-threatening illness, and yet it has been all but ignored by the Federal government's health agencies. Many of the 1 million+ patients are entirely bedbound, or housebound. Our illness is about far more than "fatigue," it is also about constant & widespread pain, headaches and migraines that last for months on end, immune systems that don't work, difficulty thinking clearly and memory loss, and a long list of even MORE symptoms. We have suffered for years while FDA/CDC/NIH does nothing but debate policy. We need real HELP! And we need the public to know we're here, laying in our beds, wasting away. Please help us get our message across!

Janet - 2/3/2013 9:49 AM
2 Votes
There are millions World wide who are are desperate for Ampligen to be licensed as the treatment of choice for ME. Many are concerned for Robert Miller who is on hunger strike, he feels he has no other means to draw attention to the lack of appropriate treatment for this patient group. The time to put right years of neglect
NEWSCASTS ON DEMAND

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